Fragile X is a syndrome caused by a mutation on the x chromosome, affecting approximately 1 in 3,600 to 4,000 males and approximately 1 in 4,000 to 6,000 females. The symptoms it shows appear as intellectual disability (formerly called mental retardation), Autism Spectrum Disorder, tremor, and physical feature differences. Fragile X appears at different levels, ranging from mildly discernible to very apparent.
Within the framework of the educational system, children diagnosed with Fragile X are eligible for a number of helpful programs through parts B and C of the Individuals with Disabilities Education Act (IDEA). While you may have to push a bit, as well as jump through a few hoops, evaluations, and red tape, your child has rights to a number of therapies and assistance.
Research on treatment for the various issues associated with Fragile X syndrome is plowing ahead, so be an informed parent. The internet has numerous up-to-date sites where parents can share tips and read up on the latest developments. Many of the tips on this site will be helpful for you.
Above all, we’re here to help all children, teens and students succeed with their exceptionalities, Fragile X included!